Retinitis Pigmentosa and gene therapy (Video)
This video is an English news interview about the first injections of for retinitis pigmentosa into a human subject at Moorfields. A review of litereature shows that Dr. Ali has been working on several mouse models of RP and vector delivery.
This pubmed link for more info on gene research. This link goes directly to an artical citation by Dr. Ali … to see his other articles, click on his name.
Last night I watched aprogram on Shroug TV (Sudanese)about a poor Sudanese family ,the father ,a poor carpenter supporting three male adults and their sister completely blind ,the fourth boy on his way to total blindness,they suffer from Retinitis pigmetosa ,NO HOPE they were told.The program director and the family are calling for help.Iam also calling for help to this family and my own three adult neices whose parents double first cousions inherited them RP and died without support ,Iam helping them besides supporting my family.I made a search and a glimpse of hope and light sparked through the darkness in which these poor people found themselves.I address Dr.Ali and all humanitarian bodies to help.God bless.thank you
Dear Sir
I would like to extend my congratulation to Dr Ali for his remarkable achievement in gene therapy.I am also an ophthalmologist and unfortunately recently diagnosed by ophthalmologist in USA as suffering from central cone dystrophy.I am very hopeful for my future after knowing the success of gene therapy.I want to offer myself for any treatment trial in UK or canada.If possible i would like to know as where to contact for this.
carissimo dottor Ali.
mi chiamo Luigi Polverino scrivo da Napoli ho mia moglie affetta da Retinite Pigmentosa in stato avanzato vorrei
sapere come e dove poterla curare .
Cordiali saluti e grazie
i am a sister of rp patient.she is suffering from childhoodplease help her in treatment .let me know whats required
I am suffering with Rp I studied M. Sc maths I am facing lot of problem I need the treatment I am living in India
R. Arul Kumar
NO. 144 Avvai Steet
Thiruvalleeswarar Nagar
Annanaar west
Chennai 600 040
Tamilnadu
India
hone 91-44- 26158826
I need details about treatment
dear sir i am 19 yr old male .i am suffering from retinal pigmentosa i am from nepal please give me idea for the treatment of my disease thank you
Dear dr, ali i have son who is def and has rp ill like have some informaition hwat the apossebletie,s are for my son.
thanks gr.. love,s
Dear Dr. Ali
I live in Philadelphia pa. I have to parents both diagnosed with RP. Both are legally blind. My father was born blind and my mother lost her sight by the age of 20. I have hope that one day my parents would see the faces of the children and grandchildren. If there is any way to sign up for trails we would be interested. janet_m08105@yahoo.com
THERE HAS GOT TO BE A CURE FOR RP BY NOW WITH STEM CELL RESEARCH. MY BEST FRIEND IS ALMOST BLIND. IF THERE IS ANY KIND OF TREATMENT PLS LET ME KNOW ASAP.
THANK YOU
SASSYS777@WOWWAY.COM
Hi i am a 38 year old east indian male from South Africa and am losing vision fast due to RP! please can someone offer some advice and hope??
a1pawnbrokers#gmsil.com
Hello
We live in Russia. My brother and I have got a diagnosis primarypigmentary degeneration of retina since childhood. I am 24 years old, my brother is 19. The complete diagnosis is pigmented retinitis of both eyes,rotatory nystagmus, divergent concomitant strabismus of the right eye, hypermetropia of low degree, abiotrafiya mixed belotochechnoy of both eyes. Knowing about the types of inheritance of this disease, we have become familiar with our family tree, but nobody among our close relatives has such a disease. I get dedistroficheskay therapy twice a year. but there is no any effect. As far as we know, the research say that there is no effective treatment of this disease. Could you tell us, please, if your clinic can help us?
Sincerely,
Azat Sungatullin
Dear Sir
This is Manzoor Tamboli from Pune, Maharashtra State,India. My father is suffering from Retinitis Pigmentosa since approx 19 years. Is this can be curable? We did whatever we can do for his sights,but every time we failed. Please do reply on manzoor.tamboli@yahoo.com Hoping for the positive reply. May Allah bless your work.
Regards
Manzoor Tamboli
i am ravinder working for an airlines suffering by RP and night blindness please sagest me any treatment, my contact is rav_son2005@yahoo.com
i am Akash working for an BPO suffering from RP and night blindness please sagest me any treatment, my E-mail ID is contact is +91-8050714277
my father is a 71 year old diabetic- lost his eye sight in December 2011 – he keeps insisting he will do anything to see at least the ligth of day.
If you can get back to me I would really appreciate it.
sincerely,
Cerela
Sir,
Conrag on ur achivement my teacher israr malik is suffering 4rm R.P someone told them that this is not cureable can you please help me. Please tell me at legendsahil@gmail.com
Dear Sir,
Myself Amit Sharma m 22 year old n m a LDC in Jaipur vidyut vitran nigam ltd. M suffering 4m RP Since birth nw a day i got really mentally depressed bcoz i face really very difficulties in doing my work i have taken lots of treatment like accupuncture treatment by Dr. Ved parkash banga at indian acculpture center in New delhi bt i didnt c any improvement in my eyes he took 50,000rs 4 2 days of treatment bt i fount him a fraud person i want 2 advice any person who is suffering 4m dis disease dont go 2 him guyz
Sir if u can help me in dis regard plz help me sir
Amit Sharma
Mob no. 92520-61514
Email -amit.pancholi.sog@gmail.com
Dear Sir,
i am moroccan man 28 years old and i have RP, i am losing my vision and i felt like nothing i can do until today when i see this this video, i need help and i hope i can find on you to nake my vision back to me,
my email is said.ouadoudi2012@gmail.com
thank god for dr ali and all the wonderful people working on these diseases,we all desparatly want to at least stop the progression of the disease and of course any improvement,is there anything wee can do now to stop it getting worse so we can benefit by future treatment,keep up the great work
Dear Sir,
My Dad Ashish R. Kothari is suffering from Retinitis pigmentosa since childhood. Please help him in his treatment. I am really very happy in seeing this video. I want my Daddy to see me and live life happily. He has struggled a lot for so many years. You are really a God for me. Sir, please let me know is there any way or treatment for this disease and Could you please let me know that in future will I and my family will have this problem.
Sir, If you can help me in this regard please help me Sir.
Keep up the great work Sir.
Thanking you,
Regards
-Falguni.
My email id is Falgunikothari174@gmail.com
I am 45years RP male patient since 2006.Vision is decreasing gradually.Earlier night vision problem and now day vision problem so far.If any cure in this stage kindly response me.
There is no cure
Hai
Am Sasya, from INDIA. my father had RP. he got it genetically from my grand father. Now he lost his vision totally. Please let me knoe is there any treatment for RP. My father is ready for genetic trials also for any developing treatment methods.
Hello My brother and I both suffer from RP WE ARE BOTH TOTALLY BLIND AT NIGHT AND HAVE VISUAL BLIND SPOTS FLOATERS AND HALO’S. THIS IS AWSOME!!!!!!!
hello sir,
my brother is suffering from RP and he is now 32 years old. sir could you please suggest any fullproof treatment for the disease.
sir my email.id is vaishalisah.sah@gmail.com
Dr. Ali could u please tell me as upto what age this gene thaerapy for RP works
My father suffered from RP his entire life. As a teen he had what people called coke bottle glasses. Over the years it got worse. He married my mother right before he totally lost his sight. They had 3 of us kids. Myself now being 33, and spend a lot of time talking to my father. Realizing he doesn’t have a lot of time being he has kidney failure, for going on 11 years . He tells me how much he wants to see us kids and his 11 grandchildren before god decides to take him. I have been looking and looking for cures for his complete blindness. Us kids only know him as being blind, and would give anything to give him the gift of seeing his family before it is to late. If anyone knows of how we can give him this gift, please let me know. My email is elishiaboyer@gmail.com please only serious emails.
I am suffering from RP.I am 55 years old. Now i have no vision. i am very eager to see this bright world and to do my day today life. can i walk alone. i am going on thinking about it. Please give me good suggession for getting treatment for these cruel RP. I want to know the places where i get treatment in southern district of tamilnadu. Thank you. my email is kkthomas2008@gmail.com
Sir i am subina.My sister is suffering from this Ill. I dont know how to treat her. i dont have money for treat her. We are living in India .If you have any contact to any person they are ready to give some amount and help as Please give the contact. My no is +919739713179
i am a Brother of rp patient.he is suffering from childhoodplease help his in treatment .let me know whats required